What if they knew.

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5/31/2009 11:42:43 AM	What if they knew.
jtc57 Bristol, CT age: 44 online now!	How would you feel if the doctors know that the nerve damage you had in your hands and legs would never get better.The doctor finally told me a few weeks ago.Right now I have no feeling below my knees.I have to use a cane to get around.But sooner or later I will end up in a wheelchair.I found out there are no meds.or no cure for me.I really feel depressed and a lone.
5/31/2009 12:17:08 PM	What if they knew.
alicekathleen Sacramento, CA age: 63	Well, I make sure I had a second and third opinion! I recently saw 3 docs with a question, and each one had a different answer and response. It does not mean that anyone was wrong, it is up to the patient to decide what to do in my case. For you, I am sorry that you have a serious illness. It must be terrifying. Without knowing more, I hesitate to give any advice. I don't want to come off like Pollyanna, only you know your own circumstances and how you feel. But things I would do is to do some research, ask questions, demand answers, take care of any paperwork, such as applying for society security disability. And, this advice I will give... if you do not have a pet, get one, a sweet kitten who needs you and will love you through thick and thin. Pets are life savers. Let us know how you are doing. Alice
5/31/2009 1:10:05 PM	What if they knew.
jtc57 Bristol, CT age: 44 online now!	To let you know more I am on disability and I have two dogs.I've had three doctors check me.They all came to the same answer.They can not find out what caused the nerves to die. They even sent blood work to Boston.I've had alot of test done.They tell me there is only one other person with this.So there is no know studies done on this.I have look it up and nothing good comes out of it.I will end up in a wheelchair.It is really depressing knowing that my future is going to be in a wheelchair.I worry what going to happen to me. Jackie
5/31/2009 2:51:20 PM	What if they knew.
sandra49ok Shelton, WA age: 50	my heart goes out to you i would try to get a second opinion
6/7/2009 12:03:09 AM	What if they knew.
amethystjewel Saint Helens, OR age: 55 online now!	Quote from jtc57: How would you feel if the doctors know that the nerve damage you had in your hands and legs would never get better.The doctor finally told me a few weeks ago.Right now I have no feeling below my knees.I have to use a cane to get around.But sooner or later I will end up in a wheelchair.I found out there are no meds.or no cure for me.I really feel depressed and a lone. I know I wouldn't like it but not sure exactly how I'd feel without walking in your shoes. Not too happy, I'm sure. I would seek out a 2nd opinion, though!! My and prayers are with you in this life changing event that has happened to you.. May you have Gods blessings...
6/9/2009 5:24:30 PM	What if they knew.
titanicrose Schaumburg, IL age: 43	Sorry for how you feel! If you are not happy go to another source for information. I just found out I am disabled for certain work situations due to an injury from work. I can't lift anything up to my shoulders and above my head with my left arm. I have a 20lb. limit at my waist too. Life sucks sometimes! I will have pain on and off for the rest of my life. The bright side is we are alive. Peggy P.S. Good will come to us in another way I believe! [Edited 6/9/2009 5:27:47 PM PST]