| 12/25/2007 3:56:19 PM |
Fibromyalgia |
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libraryliz
Martinsville, VA
age: 57
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I hope they are catching the cervical cancer early. I had it 21 years ago and it was caught early enough that I didn't need chemo. Hope that is the case here. Prayers are with you. Keep positive.
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| 12/25/2007 4:05:53 PM |
Fibromyalgia |
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herself
Mohawk, NY
age: 64
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something wrong living in a country that has all we do and there are people out there fighting, fighting, to get medical help...what's wrong with this society???
Lynne
I feel so bad...other than prayers is there anything anyone can do from long distance????
many of us a retired or so parttime...is there any research for funding or anything like that that maybe some of us could help....
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| 12/25/2007 4:16:50 PM |
Fibromyalgia |
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ks51
Santa Rosa, CA
age: 51
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Herself: I'm sure that there is alot out there...finding it? Your heart is good, that this would be one of the things asked. Nicley done.
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| 12/25/2007 4:20:15 PM |
Fibromyalgia |
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lotsafuninpa
Tioga, PA
age: 66
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Coleen, I will be praying for Merideth. This dang cancer has taken a lot of my family,and I know how terrible this disease is. This poor lady must be really going through a lot. I hope they do something fast.
Many prayers and God bless you all-----hugsssss--Pat.
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| 12/25/2007 4:43:58 PM |
Fibromyalgia |
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herself
Mohawk, NY
age: 64
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heartfully meant...it would be an honor....I am a C survior, this far...lost husband to it....and believe in and try to "PAY IT FOWARD" whenever I can...
thanks,,,
lynne
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| 12/25/2007 7:35:08 PM |
Fibromyalgia |
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queenofhearts61
Seymour, IN
age: 62
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There was something about the new medicine that makes it not a choice for me.
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| 12/25/2007 7:41:44 PM |
Fibromyalgia |
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herself
Mohawk, NY
age: 64
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for the fibro....sorry to hear that...from everything i have heard it is a really difficult (and that really doesn't even touch on it) to live with...think I said before...my exs wife has it and she is only in her mid 40s...not that I know if age has anything to do with it....
sorry to hear that it won't help you
Lynne
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| 12/25/2007 9:28:25 PM |
Fibromyalgia |
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colleen58
Columbia, SC
age: 58
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Thanks for all the prayers and support. REALLY appreciated.When I find out more about treatment I'll keep you informed. My niece has had a really rough time. No one deserves the hand she's been dealt, especially at her young age. Colleen 
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| 12/25/2007 11:39:11 PM |
Fibromyalgia |
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sassy_lassy
Kingston, TN
age: 65
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I was diagnosed with fibromyagia and prescribed Lyrica for it but the side effects are real bad, i had a lot of swelling of the face ,hands and feet. shortness of breath and just felt it was not worth it to take so i just work through the pain with the help of tylenol.I believe it is suppose to do something to the nerves to relieve pain.My doctor gave me a prescription for 120 and 5 refills but I guess I only took 2 weeks of it before I decided it wasn't for me.I am not saying that it will do that to everyone but for me ,no I will not take it anymore.
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| 1/4/2008 4:21:08 PM |
Fibromyalgia |
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joy1954
Blue Springs, MO
age: 53
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I took Lyrica for just 4 days and had a major reaction to it -- the doctor has now listed it as one of my drug allergies. I use theraputic massage and will stick with the ibuprofen after my experiences with Lyrica.
Has anyone used it with good results?
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| 1/4/2008 5:08:29 PM |
Fibromyalgia |
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wvpenni
Morgantown, WV
age: 55
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I have had FM for 16 years and so far I have been through several meds and therapy. Water therapy made me go so numb that I had no legs. It took six injections in my neck and 6 in my spine before I could walk. I rty to walk a lot and keep moving in spite of the pain. You just can not give up! Did you all know that they called FM, Jobs Disease?
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| 1/4/2008 5:16:52 PM |
Fibromyalgia |
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wvpenni
Morgantown, WV
age: 55
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My doctor put me on Lyrica and I didn't have the problems you had, but it didn't do anything for me either except helped a little with the restless leg syndrome. I take Requip for that and it really does help. The sleep deprevation is horrible. I can not fall to sleep. I find that the extra strength Tylenol and other anti inflamatories as well as excercise, helps the most and,,,in the summer I feel better so I know that the weather conditions only worsen the pain.
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| 1/4/2008 5:40:28 PM |
Fibromyalgia |
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thepkk
Springfield, MO
age: 53
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I have this horrible fibro as one my many things wrong and I agree it is Jobs decease I ache all the time from it. From what I hear of this new medicine I am glad I haven't tried it yet. I take to many other drugs for it. I don't understand how you all can stand massage?? I can't take anyone rubbing on my tender points. It is strange how what works for one and doesn't for the other. I personally feel better with pool threapy and about the only exercise I could do. But that was before I had a knee replacement. Good luck to all with this.
Colleen your niece is in my prayers.
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| 1/4/2008 6:34:38 PM |
Fibromyalgia |
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ramblingrose
Birmingham, AL
age: 62
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lotsafun, I'm glad you can keep going even when in pain. I can most of the time, but there are times when I can barely get out of bed.
I work every day, come home, get things together for the next work day.
I take ibuprofen, flexirel, and acetimenafen pm. When I have restless legs, I take sea salt. It helps more than anything I've taken for restless leg.
I can't take aspirin because it causes horrible ringing in my ears.
I do better when I get moderate exercise, have a few drinks and go out dancing. lol
I don't want to try Lyrica because of the possible side effects. Too many new drugs have long term consequences. I don't need anything else to deal with.
I have completely changed my diet. I don't eat wheat, tomatoes, potatoes, eggplant, or peppers. The only meat I eat is chicken or fish, with no phosphates. I cook what I eat from scratch. I never eat anything prepackaged ... gravies, mixes, canned foods, cured meat or anything with additives. I don't eat sugar or table salt. I make my bread, because I don't eat wheat. I eat mostly fresh vegetables and fruits and seeds and nuts. I eat raw nuts, not cooked or salted. One exception, sometimes I roast peanuts. I have a juicer and juice fresh vegetables and fruits.
These dietary changes have made a difference in the way I feel. But, even with all these changes I still have days when I am so sore I can barely walk. Some mornings when I get up I almost scream from the pain of putting my feet on the floor. This has been going on since the mid to late 1980s. But at least I have legs and feet that work. I have a good mind and am very mobile.
But, I will NEVER ever give up or give in! Life is Good and I plan to live it! YooHoo! 
Blessings to all of us who deal with this pain every day.
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| 1/4/2008 6:45:26 PM |
Fibromyalgia |
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thepkk
Springfield, MO
age: 53
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Ramblin and others how do you manage to work?? My dr Made me quit and go on disability plus I was about to get fired for missing so much work. As it was I was there part time and was going to have to pay for my own insurance. So it was medicade and food stamps till I got the disablility approved and that was no overnight thing. I wish I could even work part time now, but don't think I could do it even at that. I am in so much pain between the fibro, athritis and my knee surgery from hell. Hang in there as long as you can but I don't know how you do it.
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